Working for a living

Penny visited with daddy at work this morning. 

 I think she's management material!

Can't wait to hear all about it when she gets home tonight :)



An outing for Porter (aka Happy Birthday Aunt Missy)

Missy & Eric had everyone over for brunch on Sunday to celebrate Missy's birthday.

 It was Porter's first social outing and he had a great time!

 He loved all the snuggles...he wanted cake, but we told him he has eleven months to wait before he can have some.

 Happy birthday Aunt Missy! We love you!

Meeting Aunt Nic & Dave

Aunt Nic & Porter finally had their first date. And boy was she excited! Poor Aunt Nic was sick when Porter was born and mean old mommy wouldn't let her come visit until she was all better (unfortunately, she had a wedding in Chicago the first weekend she was all better, so the stars finally aligned this weekend). 

 Nic & Dave came on Saturday after their pre-Canna class. They helped us out tremendously! Penny had a blast playing with them. And they had a blast loving on Porter.

 Can't wait to see you guys again!

A Fun Week

Last week, Porter met Aunt Heidi :)

 And he read a few books :)

 Sister fell in love with sunglasses.

 We bought tickets to the gun show :) Love my strong little stud!

 And we had a lot of fun!

We hope this week is filled with just as much fun!

3 weeks

I'm late posting pictures from this past Tuesday. Porter is now 3 weeks old. He's having some great awake, alert playtime periods.  And he's still sleeping well.

 On Thursday we went to the doctor for a weight check. Porter gained a good bit of weight- we're up to 9 pounds 2 ounces...good job big boy! The doctor is still concerned that we haven't completely kicked the jaundice, so we're doing a 24 hour cycle of formula to rule out breastmilk as the cause of the prolonged jaundice.

This week, I decided to have some fun with Mr. Porter. There is a website called Mila's daydreams, where a mother used fabric to create scenes for her sleeping daughter. Genius! She does fan contests...here is my first attempt- not quite a contest entry photo, but still fun. I'm trying to come up with some silly ideas for contest entries for Mr. Porter.

We are loving life at 3 weeks. This boy is amazing :)

3/21 Our First Down Syndrome Awareness Day

Today we celebrate the gift that is Porter Charles. We hope you'll join us as we begin to spread awareness of the many things we've learned over the past few months.

There are parts of our story that are sad. Looking back, they didn't need to be sad days, but the negative way the news was delivered just caused them to be sad days. Like the Monday our lives changed. We had our 12 week ultrasound on a Friday. The baby looked amazing- he was sucking his thumb and swimming happily inside me.  First thing Monday morning, Genzyme left a message on our home answering machine. They only call if there is a problem. It took them six hours to return my call.  We're sorry, they said, but there is a 1 in 5 chance that your "fetus" has Down Syndrome. No longer a baby, medical professionals quickly changed their verbiage to "fetus."  I've grown to hate that word.  I saw my baby suck his thumb...he was a baby. My OBGYN scheduled us for a CVS test the next day without any genetic counseling, in order to "keep our options open," despite the fact that I told her I was opposed to terminating regardless of any testing outcome.   Luckily, we met with a very understanding doctor at Perinatology, who explained the test and additional testing/monitoring options. When we declined the CVS test because we felt the risks were too high for our baby, he supported us.  We were scheduled for genetic counseling soon thereafter.  The counselor talked about statistics. 90% of people who receive a prenatal diagnosis do choose to terminate, she told us, because having a special needs child carries so many complications.  There was a "if everyone is doing it, it must be right" spin to her speech. "Except for in Texas...they're very religious down there" she actually said.  Overall, genetic counseling left me with a sour feeling.  But over the next few weeks, I felt the need to know growing inside me, as every "I'm a big sister" that came from Penny's mouth put me in tears. So we scheduled our amnio and we waited.  Looking back, we were never presented with resources for raising a child with Down syndrome or told that there is a long waiting list for adopting children with Down syndrome. Most of the information we received from medical professionals in those days when we were labeled "high risk" was negative.   

At our amnio, we met ultrasound tech Mary. She was an asset throughout this whole process and we continued to see her for many of our remaining ultrasounds.  Mary was calm and clearly explained everything she saw. She always made us feel as though our baby was an amazing baby- something we needed to hear! I was more than a little nervous for the procedure, but she calmed my nerves. Ten days later, I got the call while at work from the genetic counselor. "I'm sorry, but it's Down syndrome".  I don't remember much else of that phone call, but I do recall just before hanging up that I remembered to ask the baby's sex. "It's a boy". I had to call and share the news with RC. And then we spent an afternoon wondering what the future would hold for this baby boy and our family.

There is an amazing part of our story when we realized we weren't alone on this journey.  The day we received our amnio results, we had to take Penny for her flu shot. She pulled a magazine off the shelf at the doctor's office and brought it over to me.  It was a magazine filled with resources for special needs children. In it, I found the contact information for the Montgomery County Down Syndrome Interest Group. I emailed the contact that evening and she immediately responded. She put us in touch with some other families who had a prenatal diagnosis and they were amazingly supportive. I also emailed the greatest advocate I've discovered and quickly received a response from Kelle Hampton herself.  Her blog, Enjoying the Small Things, has opened my eyes to a wonderful perspective on life.  I thank God for these resources every day.  And for our families- we shared the news with them that same night and we were overwhelmed by their support!

The most amazing part of our story arrived quickly on February 28th.  Porter gave me the birth that I dreamed of. And from the moment the doctor placed him on my chest, I knew without a doubt that he was mine and I was his. I was so afraid that I was going to cry when he was born. Instead, all I wanted was for him to cry- and when he finally let out those first little cries, it was the best sound my ears had ever heard.  There were a few minutes where I held my breath waiting for him to perk up, and then our episode with jaundice, but if those are the worst things that the universe throws at us, we are amazingly blessed! His heart is healthy and he is growing stronger by the day!  He is a calm little baby and his eyes have a story to tell. I can't wait to live that story with him!

I know Porter is only three weeks old, but today, we don't really see Down syndrome when we look at him.  In some pictures, he looks like the spitting image of big sister Penny. He's got ten fingers and ten toes and the most beautiful little eyes. He makes the best faces and sleeps like a dream.  He is just the baby we needed and I am so thankful and blessed to rock him to sleep!

We are incredibly thankful for the love and support we've received over the past few months. We hope that you'll continue to follow Porter's story as he grows and teaches us more about life and love than we ever knew.

Happy St. Patty's Day

 Our little lucky charms

 are so lucky to have amazing friends and family!

 Slainte!



A Heart Full of Love

We had a great visit with CHOP Cardiology this morning. Porter's heart is very healthy! Full of love, just like it should be! Thanks for all the prayers.

Frogs & Snails & Puppy Dog Tails

That's what little boys are made of!

So Thankful!

This is Porter showing off his Guess How Much I Love You "I love you as wide as I can reach" look.  And we do love you all this much!

We are incredibly thankful for all the love and support we are receiving.  We are incredibly happy and we have you all to thank! Thank you for loving on Porter and Penny. Thank you for helping us as we adjust to life as a family of four. And thank you for sharing in this exciting time as we get to know our little man! 

Two Weeks

It's hard to believe Porter is two weeks old already. We visited the doctor for a weight check and the little man is officially back to birth weight :)

 His jaundice is clearing and he's starting to get a little stronger and show a little more personality every day.

Here he is looking just like big sister :) We love you Porter!

Porter Meets Some Friends

Porter got to meet Peet & Colleen and Kayte & Tommy this weekend.

And, big sister enjoyed a much needed play date with Luke. 

It's so much fun to watch them play together - they've hit the point where they are really interacting :)

It was so great to see everyone!

Grammy & Pa Visit

Grammy & Pa made the trip from St. Louis to meet Mr. Porter and play with big sister Penny this past weekend.

I think they had fun!

Grand kids :)

Bath time!

Playtime

Coloring

Swings

Love!

It was so great to have them here. Thank you Grammy & Pa for helping out around the house and loving on our little ones! Can't wait to see you again.

Family :)

Porter's 1st Photo Shoot

The Bella Baby photographers took Porter's photos at the hospital. As with Penny, we LOVE the results!

 A Cardinals fan already :)

 Baby boy!

One Week

Porter is ready for his weekly photos :)

Big Sister Had Fun!

Big sister had fun while we were at the hospital.

She loved the attention :) They took her to the playground, the library, the mall and church.  She had a chance meeting with Cookie and Elmo at the mall!

After spending a few nights away, I swear she grew two inches and gained five pounds. I missed my girlfriend so much! One of her two year molars popped through while we were away!

Many thanks to Becky, Adam, Missy, Eric, Nana and Papa for taking such good care of her! And many thanks to Aunt Nic for taking care of Penny the weekend before Porter arrived- Daddy & I were able to go out to dinner one last time :) We really appreciate everything that everyone has done for us!